Josiah suffers from Diffuse Intrinsic Pontine Glioma (DIPG). A DIPG is a tumor located in the pons (middle) of the brain stem. The brain stem is the bottom most portion of the brain, connecting the cerebrum with the spinal cord. The majority of brain stem tumors occur in the pons (middle brain stem), are diffusely infiltrating (they grow amidst the nerves), and therefore are not able to be surgically removed. Glioma is a general name for any tumor that arises from the supportive tissue called glia, which help keep the neurons (“thinking cells”) in place and functioning well. The brain stem contains all of the “wires” converging from the brain to the spinal cord as well as important structures involved in eye movements, face and throat muscle control and sensation. Josiah was diagnosed on April 22, 2013 with stage 4 DIPG. This benefit was to raise money to continue his medical treatments & help his family with the expenses associated with treatment.
During the event, Josiah was doted over. He was taken for rides on a 3 wheeler style motorcycle, and was presented with his own fitted motorcycle helmet. The many children in attendance all played with him. Josiah enjoyed the day immensely.
Darren was diagnosed with Glioblastoma this past summer, and had surgery to remove the tumors in July. Darren feels a special bond with Josiah, and was happy to lend his presence to assist in the fund raising efforts for the 5 year old.
Darren, along with his new wife Amanda, attended the party which included barbeque, live music & an additional appearance by DJ Doc Holiday. It was a great party, and Darren was honored to be invited. Pictures from the event are available on the Gallery pages.